mid-night reading
numbers flash before my eyes
digital signal from a drop of red
correction, new message
delivered back to the source
all of this on autopilot, my mind
elsewhere, but right here
poke her, prod her
in the unfaltering trust of her slumbers
bringing unease at the thought
of yet another vulnerability
Hold a child’s trust in your hand, and you will know what it’s like to be a parent.
But you cannot always be a guardian. You can only hope that such faith will always be well placed. Such are my thoughts at 2 am, during a mid-night reading.
My daughter was diagnosed with type-1 diabetes when she was eight years old, and this was written in 2004, when she was ten. I would check on her when I got home from work after midnight. That would mean a finger stick to test her blood glucose level – the reading visible on the test meter – followed by settings on her insulin pump if her level was low (which would happen while she slept).
She is now 25, and very fit. In her desire to stay updated on her levels without constant finger sticks, she now has a continuous glucose monitor (CGM), which stays in her side with a tiny insertion and sends a reading to her phone app. It does just what the name says. I’m proud of her determination and the fact that she serves as an excellent role model as a school counselor.
I have a few poems written about our experience here.
This poem was brought to mind when I read Insulated, by Iain Kelly.
Image source: nih.gov
I’ve had family members that had to test and inject.
I’ve seen those commercials… I am glad some medical things are making some lives easier.
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She calls or texts me whenever she hears of a new development. Yeah, for progress.
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Ken, your poem is beautiful and even more so when you explain the pain behind. Thank you for sharing this poem, your painful time and the now quite successful life your daughter has created with her positive spirit.
Love conquers so much and also makes it hurt more.
miriam
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Thank you, Miriam. The closer to our hearts, the greater the impact.
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I’m sure this must be something you think about often, and I’m glad your daughter is doing well. It’s good there is new technology that sometimes makes medical conditions a bit easier, as well as saving lives.
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She stays on top of the latest developments and tells me as she finds them.
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I have a friend who actually has an artificial heart. So many amazing medical advances!
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Wow! Yes.
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We are shaped by our challenges … and gifted when others share their experiences of challenge. Among the many other thoughts this summons, I sense a bonding between you and your daughter that continues to shape both of you. This poem is a gift. Thank you.
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Thank you, Jazz. We are especially close.
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This gave me pause to think and remember…none of my four children have had any ongoing disease, such as your daughter suffers from…from time to time there were things momentarily life threatening and I thought that was hard enough, but this is so far beyond that..thank you for going on at the bottom of the page to tell us the success your girl has become..you must be very proud of her, doubly so, I think.
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Indeed, I am. Thank you.
As parents, we viewed it as something that was manageable (albeit with its complications), and were happy for that.
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This poem strikes such a chord. We are early on our journey, finger-pricking at 2am every night, good days and bad days. Your daughter’s story gives us such hope. Thanks for sharing.
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It’s a fragile balance that requires constant attention. Everyone’s body chemistry varies, but it doesn’t have to stand in the way of accomplishment. My daughter was a cheerleader. It never failed to impress me to see a 98 pound girl holding another girl over her head. As an example, here’s a link to athletes with diabetes: https://en.wikipedia.org/wiki/List_of_sportspeople_with_diabetes#American_football
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I thought of Iain’s story right away when I read this. Parenting makes us so vulnerable. I’m so glad that technology has made it easier for your daughter and everyone with this illness, but it’s hard not to keep that worry always in the back of your mind. (K)
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Yes, the concern is always there
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Ken, I echo what others have said – so glad for the modern technology that has made your daughter’s life easier. It’s hard when our kids have any kind of medical condition that requires constant monitoring – especially when they’re young!
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Thank you, Betty. I know I’m thankful for modern medicine.
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This is exactly what I am going through now. His blood glucose invariably dips around 2-3 am. I have woken him up so many times to give him something to eat or drink.
Thanks for sharing this.
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The hormones of a teenager make it even harder to predict the fluctuations.
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That is so true. The fluctuations are often crazy. Moreover the latest technology is not available here. So I am grateful for each uneventful day.
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